I’m Tina, I currently have many invisible illnesses. Interstitial cystitis (IC), fibromyalgia (fibro), diabetes, hypertension, sleep apnea, pelvic floor dysfunction, irritable bowel syndrome, diverticulitis, generalized anxiety disorder, TMJ, PTSD, migraines, chronic pain syndrome, chronic fatigue, Epstein Barr Virus and I’ve had 31 surgeries. I take a lot of medication to control these issues. But if you were to see me, you would just think I am a fat person that needs to exercise and eat less. Let me tell you, if I could exercise I would, but I hurt all over, all of the time. I am constantly fatigued and must rest after taking a shower. I do not like the way I look, I do not like having to park in a handicap parking space and you may not see anything wrong with me when I get out of the car to go into the store, but when I come out, I am dragging, I’m so tired I can barely think, the brain fog has set in and sometimes I don’t even know where the car is parked.
But…I’ve been blessed. Funny I say something like that after all of the things that are wrong with me, but I am. I have a loving husband that takes care of me and keeps me going in the right direction, forward. We stop in the store to rest as I need to and he does all of the loading and unloading of the car with the groceries. He always goes with me because of the brain fog and weakness after trudging through the store.
I am being tested for Cushing’s syndrome right now. If I have it, it would possibly be the answer to some of the problems. It might allow me to lose some weight, if treated correctly, and possible eliminate some other illnesses. It would be another problem itself, but it might not be as bad as all the combined illnesses I suffer.
I try not to concentrate on my illnesses, but you wouldn’t think that considering that I’ve made this website, but I thought there was a need for awareness of some issues concerning invisible illnesses. When I’m not working on this site, I like to crochet, play scrabble online, beading and I have many other crafts that I will do occasionally. I seem to lose interested in them and move on to the next one within a few months, or less. I read that is a symptom of Cushing’s syndrome. We will see.
Contact me below to add your invisible illnesses to the list or just to say “Hi” or vent. I’ll get back to you as soon as I can. You can follow me by adding your address in the allotted “Follow Via Email” area on the right side of this page, you will receive updates every time I post a new blog post.