Over the past week, post surgery, I am finally feeling relieved. My interstim is working, allowing me to visit the bathroom less times per day. But getting to this point was a challenge.
I was so sick after surgery. I have never been sick after surgery. What started out as a little dizziness changed to a blossom of chaos. I had my bottle of pain pills, but could not keep them down.
In my easy chair my husband had helped me create a comfortable sitting position with pillows around me, but the loop of throwing up would not subside.
I had to call my favorite paramedic, who always has a bag of necessary medications with him. He arrived and had to meddle into my medical history of the day, what they gave me, where they had the IV and then he voiced his opinion on how horrible a job the nurse did at placing the IV. Within seconds, he had a vein and administered the necessary medication to break the loop of throwing up episodes. I was able to rest easy for a few hours.
Now, nearly a week later, I’m feeling so much better. I am still weak and have to watch what I do, can’t lift, bend of stoop, but I can do for myself and that makes all the difference in the world.
Come Thursday, I will be dressed in a natty hospital gown, going in for what I hope is my last surgery for along time. I like the hospital I will be in, the floors are always at a high gloss polish, the sheets always feel crisp and new. The nurses are tender and thoughtful. I will triumph over this surgery and begin my 6 weeks of healing. It will be a revelation of change from the other surgeries I have had recently because this one requires a scalpel.
The hospital may sound like it is a sterile place to go, with everything looking so spiffy. But it is not. It is a dangerous place, where nurses and doctors take risks every day, walking through blood, infection splatters, or other bodily fluids. These fluids stick to their shoes and carry on over the nicely polished floors, so never walk barefoot in a hospital. Wear the socks they give you, or take some slippers to wear. I always wear the same comfortable dress with a tank top underneath and some slip on sandals. I do not want to feel bound up by pants or elastic after surgery.
This particular surgery will be to replace my right interstim that I have had for 5 years. There will be scar tissue and unpleasantness involved in this surgery so my pain management doctor was kind enough to increase my pain medication for the month ahead.
I work well with my doctors, and feel safe in their hands. I am beginning to look forward to the surgery as it will mean my bladder will feel better and I will stop going to the bathroom as often. Everything is going to come out positive.
I just posted a page called Migraine. You can find it under “Invisible Illnesses”. I will be trying to add more pages in the near future.
My main focus, of late, has been on selling Avon. I needed to supplement the family income, but few have ordered. I may have to stop selling, as I am selling more to myself than to anyone else.
I suffer from migraines and have a page under “My Invisible Illnesses” titled My Migraines. There you will find out how I handle my migraines and what works best for me. Mine tend to radiate down my neck in most cases. I know that when I have a migraine I often times wish my head would detonate and remove itself from my body. But that is not going to happen, it just feels like it will.
These pages will remain on my website for all to read at your leisure.
Today I had a cystoscopy (a camera in my bladder) with hydrodistention (my bladder filled to capacity with medication) to help reset my bladder from being in a constricted state. The procedures always go together and are an actual surgery. I’ve had many of these done and they help with pain, frequency and urgency once the bladder settles down from the procedure.
I am in quite a bit of pain at this point in the day, the medications have worn off from the hospital and I’m back on my normal pain pills that are mild in comparison.
I write because I want people to see what an unhealthy bladder looks like. My doctor provided me with pictures of the inside of my bladder. All I can say is, no wonder I’m in pain!
Today was a bit trying, I was already nervous about being put under again so soon but almost instantly when they nurse started the antibiotic IV, my arm started turning red with an allergic reaction. It continued from the IV site to about 6 inches up my arm and around my arm, they stopped the antibiotic, gave me Benadryl and put ice on my arm until the redness subsided. Then they started it again and did the procedure.
When I woke up my arm was again wrapped in ice and whelped up worse than before. The nurse told me she could not believe they kept giving me the medication and she threw it in the trash and told me to write it on my allergy list. I had to stay in the hospital long enough for my arm to clear up, then I was allowed to leave, but there are still whelps on my arm, just not redness.
So when you look at this picture, notice the lighter spots, those are the color of a healthy bladder. A healthy bladder does not have any blood lines showing or blotches.
With no known cause or cure, it is very frustrating and painful to deal with this disease.
I’m feeling better today than I have all week. I think getting out of the house made all the difference. My husband suggested, out of the blue, that he thinks our house is a sick house because I always feel physically better when I’m out of it but not necessarily mentally better. He did not know what to call the house, as far as “sick house”, he just suggested that he thought it was making me feel worse. I’ve thought for a long time that it is a sick house, for me anyway. It has been the worst investment we have ever made and we will be so glad to get out of it once we get the mortgage paid down so we can sell it without a loss.
What is really strange is my friend that lives forever away from us, may also live in a sick house. She feels better when she is out of her house. They are remodeling theirs which could be exposing her to century old dust. I thought it strange anyway, that my husband mentioned it the way he did. And she and I talk about it all the time, concerning her health.
When we go camping in our travel trailer, I always feel better than I do when we are at home. That is what started our conversation. I mentioned I wanted to go camping again when we could. But it is getting too hot already to even think about it. It takes so much to load the travel trailer and then set it up when we get to the camp ground. And, though I love to fish, I can’t because I can’t get out in the heat. I do enjoy my quiet time in the travel trailer though, while my husband is fishing. And we always cook something on the camp fire. Good times!
Have you ever woke from a nap and been in a full-blown panic attack? I have these types of occurrences often. I do not always remember the dream that put me in such a panicked stated, but I think I’m better off not remembering them. I wake with a pounding in my chest and a tightness, I’m breathing very hard, trying to catch my breath and wondering where I am.
Being ill brings on so many side effects, not just from medications, but from the actual illnesses. Panic attacks from anxiety disorders. Aches and pains from the various syndromes or diseases. It is a hard lifestyle, but it is one that anyone can adjust to if they are willing to be strong-minded about it and work to realize their limitations.
I, personally, try not to dwell on the negatives and look for a positive in everything around me. It helps keep the panic attacks down and it helps me get through a day. Recently, I had a bad bladder flare and was not able to be on the computer blogging away as much as I wanted to be, but I kept it in my mind that the flare would pass and I would again get to blog not to mention all the well wishers that were following my blog. It really gave me insight to stay strong and focused on the positive.
Let me thank each of you for your understanding and kindness during my bladder flare and my husband’s gallbladder surgery. I was a bit of a mess during that time, but I knew things would work out for the best and they have. He is doing great now and, well, I am still going to have bladder problems, but I have learned to life with it.
My son is a firefighter/paramedic, so this is a very important day for his profession. It takes a very strong-minded person to go into a fire, put their life on the line to save, not only people, but pets and possessions. They are mentally prepared for what is on the inside of a burning building, where we are running to get out, they are running to get in. They do not fear fire, they respect it and live to control it. Imagine running into a fire for someone you do not know, could you put your life on the line? Whether anyone is in the house or not, they sometimes enter a house to find the hot-spots. They are my heroes. Thank one today! I say “Thank You!”
Today, May 4th, is International Firefighters Day.