What a sunny day it was today, too dang hot for me, but I went out on the porch and got some fresh air anyway. While going out, my sweet dog Chloe was laying near the doorway and I didn’t get the door opened wide enough. My hip scraped against the door facing and of course a cringe of pain was went through me. It was not an illusion of pain, but real pain, nearly dropping me to my knees.
I believe this right interstim is closer to the surface than the left one, leaving what feels like a paper thin layer of skin covering it. I do not know for sure if this is true, it is still too tender to really press on it for a good exam by myself. I will return to my local doctor in a few weeks. I know there is nothing that can be done about the placement of it because once you commit, you are set.
So I when I wheel over to the doctor in a couple of weeks I will not be as sore and he will be able to exam the surgical site much easier than I can, although I have placed my hand over it many times to make sure it is not getting a fever due to infection. So far so good.
Here’s a tidbit of information you probably did not know. A magnet will turn the interstim off. So when I am not feeling the stimulation, I know I have got too close to a security post at the store, or rubbed against a magnet at some point. Weird huh?
I have to say that the interstim is working wonderfully. I am very happy that I have these two devices that help me function and keep my pain at a lower level.
Over the past week, post surgery, I am finally feeling relieved. My interstim is working, allowing me to visit the bathroom less times per day. But getting to this point was a challenge.
I was so sick after surgery. I have never been sick after surgery. What started out as a little dizziness changed to a blossom of chaos. I had my bottle of pain pills, but could not keep them down.
In my easy chair my husband had helped me create a comfortable sitting position with pillows around me, but the loop of throwing up would not subside.
I had to call my favorite paramedic, who always has a bag of necessary medications with him. He arrived and had to meddle into my medical history of the day, what they gave me, where they had the IV and then he voiced his opinion on how horrible a job the nurse did at placing the IV. Within seconds, he had a vein and administered the necessary medication to break the loop of throwing up episodes. I was able to rest easy for a few hours.
Now, nearly a week later, I’m feeling so much better. I am still weak and have to watch what I do, can’t lift, bend of stoop, but I can do for myself and that makes all the difference in the world.
Come Thursday, I will be dressed in a natty hospital gown, going in for what I hope is my last surgery for along time. I like the hospital I will be in, the floors are always at a high gloss polish, the sheets always feel crisp and new. The nurses are tender and thoughtful. I will triumph over this surgery and begin my 6 weeks of healing. It will be a revelation of change from the other surgeries I have had recently because this one requires a scalpel.
The hospital may sound like it is a sterile place to go, with everything looking so spiffy. But it is not. It is a dangerous place, where nurses and doctors take risks every day, walking through blood, infection splatters, or other bodily fluids. These fluids stick to their shoes and carry on over the nicely polished floors, so never walk barefoot in a hospital. Wear the socks they give you, or take some slippers to wear. I always wear the same comfortable dress with a tank top underneath and some slip on sandals. I do not want to feel bound up by pants or elastic after surgery.
This particular surgery will be to replace my right interstim that I have had for 5 years. There will be scar tissue and unpleasantness involved in this surgery so my pain management doctor was kind enough to increase my pain medication for the month ahead.
I work well with my doctors, and feel safe in their hands. I am beginning to look forward to the surgery as it will mean my bladder will feel better and I will stop going to the bathroom as often. Everything is going to come out positive.
I just posted a page called Migraine. You can find it under “Invisible Illnesses”. I will be trying to add more pages in the near future.
My main focus, of late, has been on selling Avon. I needed to supplement the family income, but few have ordered. I may have to stop selling, as I am selling more to myself than to anyone else.
I suffer from migraines and have a page under “My Invisible Illnesses” titled My Migraines. There you will find out how I handle my migraines and what works best for me. Mine tend to radiate down my neck in most cases. I know that when I have a migraine I often times wish my head would detonate and remove itself from my body. But that is not going to happen, it just feels like it will.
These pages will remain on my website for all to read at your leisure.
Today I had a cystoscopy (a camera in my bladder) with hydrodistention (my bladder filled to capacity with medication) to help reset my bladder from being in a constricted state. The procedures always go together and are an actual surgery. I’ve had many of these done and they help with pain, frequency and urgency once the bladder settles down from the procedure.
I am in quite a bit of pain at this point in the day, the medications have worn off from the hospital and I’m back on my normal pain pills that are mild in comparison.
I write because I want people to see what an unhealthy bladder looks like. My doctor provided me with pictures of the inside of my bladder. All I can say is, no wonder I’m in pain!
Today was a bit trying, I was already nervous about being put under again so soon but almost instantly when they nurse started the antibiotic IV, my arm started turning red with an allergic reaction. It continued from the IV site to about 6 inches up my arm and around my arm, they stopped the antibiotic, gave me Benadryl and put ice on my arm until the redness subsided. Then they started it again and did the procedure.
When I woke up my arm was again wrapped in ice and whelped up worse than before. The nurse told me she could not believe they kept giving me the medication and she threw it in the trash and told me to write it on my allergy list. I had to stay in the hospital long enough for my arm to clear up, then I was allowed to leave, but there are still whelps on my arm, just not redness.
So when you look at this picture, notice the lighter spots, those are the color of a healthy bladder. A healthy bladder does not have any blood lines showing or blotches.
With no known cause or cure, it is very frustrating and painful to deal with this disease.