I used to write a “Word Of The Day” article each day or maybe it was weekly, I do not recall for sure but I am looking to get back into doing it. I just need help finding that link.
I enjoy writing and write friends long emails regularly, but I would like to get back to this blog, it is long over due for some sprucing up. I have a lot of things going on and I want to keep all of them going at the same time, they keep me active and keep my mind sharp, or at least keep it from going totally to mush.
The word of the day/week was/is something that I want to do again if anyone can direct me to that link or person that offers that word, please let me know, I’m very interested in participating.
Thanks in advance!
It has been a long time since I have been online with this blog writing about my health. I have many illnesses/syndromes and they play a huge part in my day to day living. I am dealing with something all of the time, it is never ending. I have to take into consideration everything that I do, as to how it will affect me in the long run. I know that many of you deal with the same problems. Not necessarily the same illnesses, but the same way of dealing with day to day activities.
I’m currently dealing with my back hurting and in spasms. It tends to do this when I’m overly stressed. What has me overly stressed? It is the anniversary of the time of year my Mom passed away in 2014. The actual day has passed, but it hangs on to me for a while afterwards. She passed on the 13th of January in 2014. I miss her, but I have to get past it so I don’t fall apart, I have to keep myself together because falling apart will make me sicker in the long run, it always does.
I always have my bladder to deal with and my backache can be caused by my bladder but I don’t think the actual spasms are bladder related, I think the bladder related backache is more of a deeper pain. I also have to watch everything I eat or I will be dealing with a bladder flare up and if I dwell on the anniversary of my Mom’s passing it will affect my bladder too, so I have to put it out of my mind. There are all types of things that affect us when we are ill.
One thing that really bothers me about the way I am ill. I don’t like how people look at me when we park in a handicapped parking spot. I can walk into a store fine, it is coming out of the store that I’m hobbling and barely able to walk. I’ve been through the store and I’m worn out, aching and wishing I could sit and rest, be done with the day and sleep a while. There is no doubt on the way out of the store that I’m disabled, but that’s not when people look at me funny for parking in the handicap spot. How do you guys handle it? Am I doing something wrong? Can I do something different to keep people from looking at me weird?
And what do you do when you have a doctor that doesn’t do all he can do to make sure something isn’t wrong with you? After all of the things I’ve been diagnosed with, I worry about other things. Like degenerative things. I have so much wrong with me, and when I have symptoms of something new and they persist, I get on google and look up some things and then present to my doctor. He runs a few tests to appease me and then tells me, I told you nothing was wrong with you. Ticks me off! Smug turd!
I have a lot of questions for you guys. I just don’t get to talk to people with illnesses often, except my husband and he is just experiencing the things that the rest of us have been dealing with for years. So I’m having to help him through the depression of not getting to do what he wants to do all the time because of his illness.
I feel I’m rambling. I don’t want to do that, so I will stop writing and post this. I hope your day is a good one, I feel that I will have a good day because I feel decent, not great, but decent isn’t bad for one that has illnesses. My back will get better as the days pass by.
Thanks for listening! ~Tina
It has been way too long since I posted on this blog. Many things have happened, but not all are bad. My husband’s heart attack was horrible and he is completely disabled now, and that is depressing sometimes for him, but I really like having him home. He is great company and my best friend, so having him here is wonderful.
I’ve had multiple surgeries since last I wrote, but they have all been normal, bi-yearly surgeries that go along with having IC (interstitial cystitis). I’ve done well through them all, but hate having them due to the pain they cause after each one. However, the pain soon subsides and then I feel much better for about 2 months, so I should not complain about them at all.
I’ve had some memory loss, seems my B12 is way low, but when I take a B12 vitamin I sleep a very long time and feel lethargic and confused instead of feeling good and energetic like most people. So I’m having some sort of reaction to the vitamin that is rare. I need to research it more, but I find myself avoiding it for fear of what I will find.
I’ve been tested for Alzheimer’s and I do not have it. My liver has been tested and is fatty and I need to lose weight, but don’t we all. I bought an exercise bike and it’s sitting so pretty in my living room. I need to dust it. 🙂
Christmas is right around the corner and I have all of the present bought, but I haven’t wrapped them yet and I don’t feel like doing it. I just don’t enjoy Christmas like I used to and I don’t like participating in family gatherings like I once did. I like quiet settings instead of a crowd. Maybe it is my age, but I think it is more my disposition.
Thank you for following my blog and have a great day and Merry Christmas. I’ll try to get back here more often and see about adding some new information to the invisible illnesses. Take care! ~Tina
I have been working behind the scenes lately. I want to build my website into an information database for multiple illnesses.
These are pages that will remain visible on my main website so anyone can access them for information. My goal is to have as many illnesses, syndromes, disorders, researched and listed for quick references.
The next pages to be added to the list will be diverticulitis and generalized anxiety disorder.
Pages take a lot of research on my part to find the most relevant and easiest to understand information. It is time consuming, but something I love to do. So bare with me as I work to build my website into an information hub.
Do you know how hard it is to watch a loved one suffer? I have watched my husband suffer with a chronic pain in his hips and left calf for years now. We finally found a doctor to diagnose the problem. Peripheral Artery Disease, or PAD. He recently went through a procedure that removed the 100% blockage from his left leg and returned blood flow. He is feeling much better now. His hips still hurt him when he walks too far, but his leg is no longer bothering him. I was worried sick. Literally. I’m a high strung person when it comes to worry and stress. Though he was not worried, I worried enough for both of us and our son.
It was up to me to take care of the dogs, feed and water, make sure there weren’t any accidents from our elderly dog and tend to all the household chores, after spending all day at the hospital with my husband, these simple tasks were monumental for me. Needless to say, the household chores did not get done. I managed to microwave myself some food, but did not get the dishes done. I was so tired and still worrying because he was not home with me where he belonged.
Our elderly dog, Chloe, was worried too. When I took her out to tinkle, she noticed his truck was home, but he was not, she fretted all night about him coming home from work. Neither of us slept well.
The following day gave us much relief, he was released from the hospital and allowed to resume almost all activities. Mostly, keeping me sane. I fell apart once we were home, and went straight to bed. Between fibro and IC, I was a wreck. I had stressed so much about his health that I over looked my own. My blood sugar was too high, my body was rebelling, but he was home and I could fall apart, so I did. Chloe on the other hand was excited and followed him all around the house. She’s a daddy’s girl.
It’s been two days now and I’m still achy and having to take medication for pain. My bladder is in a flare-up and my back has started having spasms. I do deep breathing exercises, sniff calming essential oils, take my medications, but nothing can ease the mind when my husband is incapacitated.
I welcome comments on how you cope with such turmoil.
It’s 3:40 a.m. and I’ve already had my cup of coffee for the day. I should not be up this early, and I will end up back in bed, exhausted. I’m always exhausted. I can’t seem to get enough rest, no matter what time I go to bed, or get up. I attribute this to having to go urinate all the time. Every 2 hours without fail, at night. (Much more often during the day.) I finally wake up enough that I don’t even try to go back to sleep. And I have things on my mind. Christmas for one. I don’t want to celebrate it with a crowd of people. I want it to be an intimate celebration with my husband. But we’ve been asked to attend the family gathering, out of town, and I don’t think we are going to make it.
My husband has to have a procedure done on Tuesday the 20th. He has 100% blockage in his left leg artery. He will need to rest afterwards and not be worried with driving. I don’t drive much because I take too many medications. Even if he does feel well enough to make the trip. I will not. I have stressed about his procedure so much that I will “crash” afterwards and be sick for about 2 weeks. That’s what my nerves do to me.
I’ve been told not to worry, but that is like telling a sapling not to grow. It is my nature, I am a worrier. I have always been and will continue to be, no matter what anyone says. I’ve suffered trauma, but that isn’t the reason I worry. It is part of me, worrying. The trauma just made it worse. It caused anxiety. I hate that word, but I have serious anxiety. I take medication for it, but it breaks through the medication and I have to do deep breathing exercises to get me through it. I know I will have many anxiety attacks before the doctor comes out and tells me everything is fine.